INTERVIEW ON HEALTH WITH MANOJ KUMAR

1. At what age where you diagnosed with Hemophilia?

Ans.1. I was about 1 year old when I fell and bursted open my chin. The bleeding did not stop even over the stitches. When I became pale due to blood loss doctors transfused me, my mother's blood. That also stopped bleeding. Then the CMO there at the NTPC hospital referred me to AIIMS Delhi where I was diagnosed with hemophilia. 

2. How it start affecting your daily lifestyle?

Ans.2. Well I have severe Hemophilia that means I suffer from spontaneous bleeds into joints too. These bleeds cause pain and swelling affecting the major joints if proper treatment is not done. And sometimes life threat bleed, I have been through all that. But as I grew bit older I have learnt to be more productive in my work even with these limitations with some precautions and availability of factor injections. 

3. Was your family supportive?

Ans. 3. Education yes but when following my dreams they are scared as they still think what a person with rare bleeding disorder will be able to do with own work. As my dreams are not small but big ones. However whatever I am today is because of their support only. 

4. Where, when and how did you believe you were more than this condition?

Ans.4. In class 11th, year 2002-03 when I almost died multiple times due to right pulmonary tuberculosis. It took doctors about 9-10 months to correctly diagnose that. I was demoralized and for once in my life I wished for death. But when I survived I knew my life is not going to end this way and that it was meant for a purpose. I was more positive now than before and I started achieving things with more fearless that fearful due to my hemophilia. I realised I was beyond my disease and that I can achieve anything I put my mind into. 

5. What was your motivation?

Ans. 5. My life's purpose has been my driving force or motivation. I want to create  a positive transformation in society where people with rare conditions and or disabilities can lead a dignified life. 

6. Is your lifestyle different than common person of your age?

Ans. 6. Not much different I lead a life that is similar to any normal person just I have to be mindful of my condition and factor availability. 

7.Due you have fears in concern to condition you are suffering from?

Ans. 7. Yes, I do have fears not for me as I know my worth and capabilities. But for my parents who are aging. 

8. What made you release the site power in me on podcast?

Ans. 8. See Power In Me is my Autobiography book and name of my trust ( Power In Me Foundation). And in our podcast we are trying to talk about rare diseases, health, lifestyle and life of people with health conditions still they are empowered and inspiration for all. 

9.What is the purpose of this organisation? 

Ans. 9. Power In Me Foundation works in Health, Education, and Livelihood for people with rare diseases, environmental issues and rural development. Ultimately help these special community and their care givers to have a Dignified Life. 

10. Your message for the people.

Ans. 10. Rare Diseases are part of the society and its not anyone's fault that they are born with this condition. Please be more empathetic with them and in fact create a social environment where they can get proper health care, education and they will automatically be more productive to the society. You never know your simple act of kindness may change someone's entire life.

AUTHOR INTERVIEW - AARTI JAIN. SAHAI

AUTHOR INTERVIEW- AARTI JAIN SAHAI



 

1) When did you decide that you should also write?

When I was in school then I was in athletics and being a sports person I was always exposed to being involved in new activities. Then my English teacher approached me to participate in the Debate Competition when I was in grade 11. I was a bit nervous at that time but with the passing time nervousness slipped into a bit of confidence and soon I prepared myself mentally to represent the topic assigned by my teacher. Then itself I decided that I should write more and work on my skills.

 

2) Do you want to inspire people through your writing or do you write just as a hobby?

I want to inspire through my writing. Though this is the process that nourishes my soul and makes me a better person with every write up of mine but I make sure that each of my writing that I pen down, in different mediums or platforms, is worthy enough of reading and inspiring the people around. I have written 3 books by far and with each book, I learn new things and I ensure that my readers also learn something new from my writing that I offer for reading.

 

3) What inspires you to write?

My daughter is just 6 years old and does not understand marketing gimmicks and all but whenever she sees my name and photo on any of the platforms or books then it surely gives me immense happiness and pride by her appreciation. This is also a great learning for me as a mother and her applause and appreciation for sure motivates me to write more and make my thinking public. She for sure motivates and inspires me through her small gestures and when her friends also like my write-up then I feel as I’m rewarded for my work and efforts.

 

4) Who are your favorite characters from your own books and why? 

I have written 3 books by far from 2019 and my favorite character is Asha from my debut book. She is for sure an inspirational character who is put in the storyline by myself as the one who learns from the contemporary women of India. She learns that despite the struggles faced by famous personalities such as Lata Mangeshkar, Kiran Bedi, Aishwarya Rai, and so on they come forth with splendid colors and do not sit back. Despite the problems, they help us learn new things. For sure, Asha is a good fictional character and she inspires us from the beginning of the book.

 

5) Who are your favorite writers?

Paulo Coelho is my favorite writer who writes upon different genres but his writing is intriguing and gives us the writers a newness in our approach. His books are all BESTSELLERS and for sure, there is a reason for it and I think that his books are so relatable. He is an ace-writer and every book of his gives us in-depth knowledge. I like the author and whenever I go through his writing then I get lost in it and want to read more.

 

6) One piece of advice you would give to the upcoming writers?

WRITER’S BLOCK is the condition when a writer is unable to think creatively or to proceed with writing. Generally, I have also seen that whenever the writers are starting to write then there are mixed opinions by the readers around which can be very harsh and demotivating. Hence, I would request all the authors who are new in writing to just take the opinions of people for improvement and not for demotivating themselves. And WRITER’S BLOCK, which may come in any way, should be avoided. So, KEEP WRITING!!!

 

7) Did you face issues in publishing or editing?

As far as publishing and editing is concerned, I have faced no blocks as yet because as a writer we cannot go wrong in publicizing the time and effort that we have put in the writing process. For me as a writer time of publishing is the final step in my writing process and I ensure to take utmost care and responsibility at that time because my book would be in the final stages of offering it to my readers. Both publishing and editing are a great doorway for the authors to present their work to their readers.

 

 

 8) How did you get the idea to write the book the No more lurking thoughts? 

I had written two books before NO MORE LURKING THOUGHTS which is a self-help book. As everyone is aware that we are facing pandemic times and because of LOCKDOWN our basic activities have received a jolt. Numerous people have experienced a block in their salary or cut out of some percentage from the salary allotted to the employees is also experienced by them. Even some people have lost their jobs. Thinking on those lines, I thought of writing my self-help book and titled it NO MORE LURKING THOUGHTS.

 

 Let's know you more (Fire round)

 

a) Your inspiration 

My daughter who is 6 years of age is my inspiration to write and publicize my thoughts.

 

b) Any other hobbies apart from writing

I like reading, traveling, and dancing to keep myself fit and in good shape.

 

c) Your favorite holiday spot 

I haven’t been to many places around the world by far but I like Shimla where I had gone with my husband after marriage.

 

d) Your favorite book and film

I like the book Pride and Prejudice by Jane Austen and I like the movies made on books such as Bride and Prejudice because they are so relatable and entertaining.

 

e) What does life mean to you? If given a chance what would you like to change on this earth or add?

Life is the quality that showcases that we human beings have and it symbolizes that we are not dead. No matter what life we decide for ourselves but we experience a lot of new things that teach us to deal with challenging circumstances at every jiffy. Life to me is also the same and it for sure enables us to learn to sail through the ups and downs every time. Life lessons are a great way for us to learn. If I get an opportunity to change anything on this earth is to eradicate CRIME AGAINST WOMEN. Be it domestic assault, rapes, molestation, and so on the list is endless, and much fewer acts or laws have been made in our law system to stop these heinous crimes. Hence, this has to be stopped and proper law should be in-action for this. This is my plea to the constitution of India.